Aspie or Autistic?

A podcast mini-series devoted to sharing the findings of ”Coming Out with Autism” (2020), a study by Olivia Smith and Sandra Jones on experiences of people with an Aspergers diagnosis after the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) changed the diagnosis to Autism Spectrum Disorder. Made by psychology graduate, autism researcher and podcaster Joana Simmons, this mini-series zooms in on the DSM-5, disability identity, neurodiversity and speaks directly to the experience of those who were diagnosed with Asperger’s, now ASD, to understand their responses and how it has impacted their identity.

Listen on:

Episodes

Monday Oct 10, 2022

Episode 6: Identity is Complex. Where to from here?

Monday Oct 10, 2022

In this, the final episode, Joana gives an overview of what we have learned so far, to reflect and establish that identity is complex. We also explore where to from here: the limitations of the current research, future ways the ground work we have covered could be advanced, and how this knowledge could be applied in the real-world.

Monday Oct 10, 2022

Episode 5: Mixed Feelings around Changes in the DSM-5

Monday Oct 10, 2022

In this episode we explore the perspectives of those who had mixed or ambivalent responses toward the changes in the DSM-5. To protect confidentiality their names and voices are not used; the voices you will hear are that of Lincoln Jones and Joana Simmons.

Monday Oct 10, 2022

Episode 4: Opposed to the changes in the DSM-5

Monday Oct 10, 2022

In this episode we explore the perspectives of those who were opposed to the changes in the DSM-5. To protect confidentiality their names and voices are not used; the voices you will hear are that of Lincoln Jones and Joana Simmons.

Thursday Oct 06, 2022

Episode 3: Supportive of the Changes in the DSM-5

Thursday Oct 06, 2022

In this episode we explore the perspectives of those who were supportive of the changes in the DSM-5. To protect confidentiality their names and voices are not used; the voices you will hear are that of Lincoln Jones and Joana Simmons.

Thursday Oct 06, 2022

Episode 2: The DSM. History, changes, labels and what’s in a name?

Thursday Oct 06, 2022

This episode covers a brief history of the Diagnostic and Statistical Manual (DSM) and the progression of the neurodiversity known as Autism Spectrum Disorder (ASD). We discuss what it is to have or identify with any kind of label, advantages and disadvantages.

Thursday Oct 06, 2022

Episode 1: Introduction and Disability Identity Development

Thursday Oct 06, 2022

This episode introduces the podcast, including why it is being made, how and with whom, and explains terminology that will be used in the series.

References

References for studies mentioned in this podcast:

Episode 1

Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10, 350–355. //doi.org/10.1016/j.dhjo.2016.12.013.

Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9, 39–46. //doi.org/10.1016/S1052-2263(97)00020-2.

Mogensen, L., & Mason, J. (2015). The meaning of a label for teenagers negotiating identity: Experiences with autism spectrum disorder. Sociology of Health & Illness, 37, 255–269. //doi.org/10.1111/1467-9566.12208.

Episode 2

Chambers, B., Murray, C. M., Boden, Z. V. R., & Kelly, M. P. (2020). “Sometimes labels need to exist”: exploring how young adults with Asperger’s syndrome perceive its removal from the Diagnostic and Statistical Manual of Mental Disorders fifth edition. Disability & Society, 35(4), 589–608. //doi.org/10.1080/09687599.2019.1649121.

Mogensen, L., & Mason, J. (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder. Sociology of Health & Illness, 37(2), 255–269. //doi.org/10.1111/1467-9566.12208.

Episode 5

Giles, D. C. (2014). “DSM-V is taking away our identity”: The reaction of the online community to the proposed changes in the diagnosis of Asperger’s disorder. Health: An Interdisciplinary Journal for the Social Study of Health. Illness and Medicine, 18, 179–195. //doi.org/10.1177/1363459313488006.

Episode 6

Chambers, B., Murray, C. M., Boden, Z. V. R., & Kelly, M. P. (2019). ‘Sometimes labels need to exist’: Exploring how young adults with Asperger’s syndrome perceive its. Disability & Society. //doi.org/10.1080/09687599.2019.1649121.